In May 2014 we organized a special sponsored cycling tour to raise money for doing research into epilepsy and sleep disorders, symptoms that unfortunately are more common in boys with the ATR-X syndrome.
Research will be done into epilepsy and sleep disorders; what is causing it, whatever form is it, what is the impact on the daily functioning of the boys and what medications are best regarding other symptoms associated with the ATR-X syndrome?
We are discussing this with Kempenhaeghe in Heeze, an institution that is specialized in doing research into epilepsy and sleep disorders on children / adolescents with intellectual disabilities. First of all to be well prepared and second to arrange the research: we want the investigations to be as stressless as possible for the boys.
We will keep you informed of all developments on this page.